Projects
Neurocognitive Registry
We are establishing a registry of patients with brain tumor who undergo neurocognitive testing throughout their cancer experience. With a large enough database, we will be able to better understand the cognitive effects of tumor location, type, and treatment. This information will help us to provide more personalized resources and treatment options to reduce the impact of these cognitive changes.
Understanding Existential Distress
A brain tumor diagnosis can raise feelings of uncertainty about the future, anxiety about death, and questions about the purpose of life. In this survey study, we want to learn more about how these issues affect those with brain tumor and their loved ones. This information will help us to design and test an intervention to improve existential distress among those with brain tumor.
Cogmed
Cogmed is a computer-based cognitive training program that has been shown to improve attention and working memory; however, efficacy of this program has yet been established in those with brain tumor. This study provides Cogmed training and longitudinally assesses participants' cognitive performance.
Sleep Improvement Study
Poor sleep, fatigue, and insomnia are common complaints among those with brain tumor. We are adapting an evidence-based intervention, Cognitive-Behavioral Therapy for Insomnia (CBT-I), for use in the brain tumor population. Participation in this research project involves attending group-based meetings where you will learn skills and strategies for improving your sleep. Caregivers/loved ones are encouraged to attend with you!
Forgotten Voices: Addressing Unmet Needs in Brain Cancer Caregivers
This two-part study seeks to: (1) understand the emotional needs and treatment preferences of caregivers of brain tumor patients over the course of their loved one’s illness, and (2) investigate how well an established psychotherapy (CALM therapy) addresses these concerns. The results of this project will be used to develop and refine interventions specific to improving the quality of life of caregivers of brain tumor patients.